Before You Exit Performs Heart Like California for Sing for Blair
Donate and Share: At the age of 6, our daugter Blair was diagnosed with Sanfilippo Syndrome. We were told she would slowly slip into the depths of the disease. First she would stop talking, become unable to feed herself, lose her ability to walk, then eventually her body would give up. We were informed her life expectancy is in her teens. Blair is 12. Here life story can be found at There is promising research and we are close to finding a cure. A cu
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