Noras amazing 3 1, 2 year old birthday with type 1 Spinal Muscular Atrophy

We celebrated Nora s 3 1, 2 birthday on the 23rd. This is truly amazing for Nora to have reached this age and still be doing as well as she is. We never forget how lucky we are to have had this time with Nora to see the wonderful person she has become. Nora has type1 Spinal Muscular Atrophy and children generally do not live very long. As you can see, Nora is different from most children. She has a terminal disease. Nora is dying from SMA (Spinal Muscular Atrophy). SMA is the, 1 genetic killer of in