Marshall Smith

Video of 9 patients suffering from the ultra rare MarshallSmith Syndrome (MSS). is a patients association for patients with MSS. Worldwide there are 30 patients known with MSS, 9 patients were present at this international gathering. This is an example that no mather how rare a disease is, family support and research is possible. Our call is that rare diseases like MSS need Stars: Social acceptance, Treatment, Awareness, Research, Sponsors. patienst names : Adam, Adriana, Ell