Living with an Unknown Genetic Syndrome ( The Only Discovered Case)

Evely lives with an unknown genetic condition. At four years old she is unable to walk or talk. The future is uncertain, but Evelys big sister promises to protect her no matter what happens. Follow Evely at Evely s diagnoses include Bilateral anophthalia, congenital heart disease, microcephaly, hypotonia, abnormal brain waves, obstructive sleep apnea, Gastroesophageal reflux disease