Science didnt understand my kids rare disease until I decided to study it, Sharon Terry

Meet Sharon Terry, a former college chaplain and stayathome mom who took the medical research world by storm when her two young children were diagnosed with a rare disease known as pseudoxanthoma elasticum (PXE). In this knockout talk, Terry explains how she and her husband became citizen scientists, working midnight shifts at the lab to find the gene behind PXE and establishing mandates that require researchers to share biological samples and work together. The TED Talks channel features the best talks and performances from the TED Conference, where the world s leading thinkers and doers give the talk of their lives in 18 minutes (or less). Look for talks on Technology, Entertainment and Design plus science, business, global issues, the arts and more. Follow TED on Twitter: Like TED on Facebook: Subscribe to our channel: